What does Ruby have? CF. And what does CF stand for? That you never feel better. That what it means.What do we do for Ruby to make sure she doesn't get sick? Give her medicine before her feed.Anything else? Yes, I know how she got CF. Cos she was born with it and she never feels betterDo you remember what happened to Ruby when she was first born? She had to stay in hospital.
And where did we stay when she was in hospital? At the Old McDonald House. What did you think of staying there? It was really fun! I meeted lots of friends! Prue and Ava. Why did Ruby have to stay in hospital? So the doctors could fix her. And did they fix her? Yes. No. Yes What else do we have to do to keep Ruby healthy? We feed her. Yes, that's true. What do we feed her? Milk. Mummy, why do we give her milk? Because thats what babies drink. I want to drink milk one day, all the time. Oh, and we give her anti-biodies and Pentavite. Lets talk about the Old McDonald House. Who else did I meet? You met lots of kids there. Yeah, cos they were sick. I meeted another girl who was a bit taller. She might be 4 or 5, I don't know how old she is. Did you really like staying there? Yep! I didn't like when mummy and daddy had to go to the hospital all the time. I liked when you went to get Rubys milk. I loved playing games with daddy everywhere.And did we get any visitors when we were there? Yeah, Aaliyah. That was fun, and Aunty Helen, and - oh, I think the girl that was a bit taller than me was 6! I'm not really sure, that was a long time ago. She said she was 8, no she said she was 9. Are you talking about someone who was staying at the house? Yep, she had a blue top and white pants. Ok then...what don't you like about Ruby having CF? I don't like her having lots of medicine. And I also don;t like her about going to the Old McDonald House. I thought you liked the Old McDonald House? I do, but I don't like her keep going back there. You mean for clinic visits? Yes. whats clinic? When the nurses and drs check her out. Yes. What about Prue? she had to stay longer! Yeah, she was still a bit sick at the time. Did Prue lie in a cot too?No. What did she lie in? Probably a bed. She is a teenager. Was there anything fun about the hospital? No- oh there was a big TV with Dora the Explorer on it, that was good! Rubys room was boring. I wish we didnt stay at the Old McDonald House. I love my bedroom.
Do all babies have CF? No. Kai doesn't. Ollie doesn't. Kelly's baby doesn't. Who else has CF? I don't know any other babies with CF. Oh! Grandma didn't have CF as a baby, but her daddy did. Her daddy name is Grandad Jimmy. And Grandma's uncle had CF when he was born. And he hardly got fixed quicker than Ruby! Really? I didn't know that. What's Team Ruby? Team Ruby...I don't know! Is daddy doing a big walk? Yeah, And why is he doing that? To fix CF! How's walking going to help CF?Walking doesn't fix CF silly! Cos we get money to help CF! Oh, what does the money do? Well, we give it to doctors- no, it's special money you get to put in your mouth and you help CF. It's not money, it's medicine but round like money. But babies don't have it, adults do. Cos you have to melt it in your mouth. Mummy I need to do a poo. Conversation closed.