My world?

Sometimes I feel like I'm stuck between 2 worlds. There is the "normal" world where there is no need to constantly manage your babys health or be scared of their future, and then there is "mother of a child with a chronic illness" world.

I have moved past the normal world, I can't get back there no matter how hard I try.

I'm not really part of the new world yet. I am still learning the dynamics, the leaders, the protocol. And I'm talking more about the community than the medical side.

I don't like to categorise myself, I don't want to have to fit into a "world".
But it can be a bit lonely in limbo.